ORYGEN Research Centre, University of Melbourne, Victoria, Australia
Correspondence: Professor Anthony Jorm, ORYGEN Research Centre, University of Melbourne, Locked Bag 10, Parkville, Victoria 3052, Australia. Email: ajorm{at}unimelb.edu.au
None.
|
|
|---|
Little is known about the development of stigma towards people with mental disorders.
Aims
To investigate stigma in young Australians and the influence of exposure to mental disorders, parental attitudes and information campaigns.
Method
A national telephone survey was carried out with 3746 people aged 12–25 years and 2005 co-resident parents. Stigmatising attitudes were assessed in relation to four vignettes (depression, depression with alcohol misuse, social phobia and psychosis).
Results
Stigma was found to have multiple components labelled `social distance', `dangerous/unpredictable', `weak not sick', `stigma perceived in others' and `reluctance to disclose'. Exposure to mental disorders and help-seeking in oneself or others was associated with lower scores on some components of stigma but not on others. Young people's attitudes showed specific associations with those of parents. Exposure to campaigns was associated with reductions in beliefs that the person is `weak not sick'.
Conclusions
Personal experiences, parental attitudes and campaigns all affect stigmatising attitudes.
|
|
|---|
|
|
|---|
Interview
The interview was based on a vignette of a young person with a mental
disorder. On a random basis, respondents were read one of four vignettes:
depression, depression with alcohol misuse, social phobia and psychosis
(schizophrenia). The vignettes were written to satisfy DSM–IV criteria
and were validated by surveys of mental health professionals asking what was
wrong with the person
described.9
Respondents were shown a vignette of the same gender as their own. The male
vignettes referred to `John' and the female ones to `Jenny'. The respondents
aged 12–17 years were read a version of the vignette portraying a person
aged 15 years; those aged 18–25 years were read one portraying a person
aged 21 years. The details of the vignettes were altered slightly to be
age-appropriate (e.g. reference to functioning at school v. on a
course). Parents who were interviewed were read the same vignette as their
child. Text of all the vignettes is available
elsewhere.10 The
four male adolescent vignettes are given here as examples. The depression
vignette was:
`John is a 15-year-old who has been feeling unusually sad and miserable for the last few weeks. He is tired all the time and has trouble sleeping at night. John doesn't feel like eating and has lost weight. He can't keep his mind on his studies and his marks have dropped. He puts off making any decisions and even day-to-day tasks seem too much for him. His parents and friends are very concerned about him.'
The depression with alcohol misuse vignette was:
`John is a 15-year-old who has been feeling unusually sad and miserable for the last few weeks. He is tired all the time and has trouble sleeping at night. John doesn't feel like eating and has lost weight. He can't keep his mind on his studies and his marks have dropped. He puts off making any decisions and even day-to-day tasks seem too much for him. John has been drinking a lot of alcohol over the last year, and recently lost his weekend job because of his hangovers. His parents and friends are very concerned about him.'
The social phobia vignette was:
`John is a 15-year-old living at home with his parents. Since starting his new school last year he has become even more shy than usual and has made only one friend. He would really like to make more friends but is scared that he'll do or say something embarrassing when he's around others. Although John's work is OK he rarely says a word in class and becomes incredibly nervous, trembles, blushes and seems like he might vomit if he has to answer a question or speak in front of the class. At home, John is quite talkative with his family, but becomes quiet if anyone he doesn't know well comes over. He never answers the phone and he refuses to attend social gatherings. He knows his fears are unreasonable but he can't seem to control them and this really upsets him.'
The psychosis vignette was:
`John is a 15-year-old who lives at home with his parents. He has been attending school irregularly over the past year and has recently stopped attending altogether. Over the past 6 months he has stopped seeing his friends and begun locking himself in his bedroom and refusing to eat with the family or to have a bath. His parents also hear him walking about in his bedroom at night while they are in bed. Even though they know he is alone, they have heard him shouting and arguing as if someone else is there. When they try to encourage him to do more things, he whispers that he won't leave home because he is being spied upon by the neighbour. They realise he is not taking drugs because he never sees anyone or goes anywhere.'
After being presented with the vignette, respondents were asked a series of questions to assess their recognition of the disorder in the vignette, what they would do to seek help if they had the problem, beliefs and intentions about first aid, beliefs about interventions, beliefs about prevention, stigmatising attitudes and social distance, exposure to mental disorders, the six-item version of the Kessler Psychological Distress Scale, exposure to campaigns and media items about mental health, and socio-demographic characteristics. Parents were asked a subset of the same questions as their child, with changes in the wording to reflect the parent's perspective.
Assessment of stigma
Young people were given questions to assess personal and perceived stigma
based on those developed by Griffiths et
al.11,12
Data on the psychometric properties and validity of these items have been
reported.13 The
questions were modified to be suitable for a younger age group: questions on
voting for a politician were dropped and the wording of some questions was
simplified. The personal stigma questions were as follows:
`The next few questions contain statements about John's/Jenny's problem. Please indicate how strongly you personally agree or disagree with each statement. John/Jenny could snap out of it if he/she wanted. John's/Jenny's problem is a sign of personal weakness. John's/Jenny's problem is not a real medical illness. John/Jenny is dangerous. It is best to avoid John/Jenny so that you don't develop this problem yourself. John's/Jenny's problem makes him/her unpredictable. You would not tell anyone if you had a problem like John's/Jenny's.'
These statements were rated on a scale of: strongly agree, agree, neither agree nor disagree, disagree or strongly disagree. The perceived stigma questions involved the same items, but concerned what the respondent thought others would believe. They were told:
`Now we would like you to tell us what you think most other people believe. Please indicate how strongly you agree or disagree with the following statements.'
Each statement was of the form `Most other people believe that'. Next, respondents were given a social distance scale based on one for adults,14 but modified to be age-appropriate. It has been shown that social distance scores differ greatly between different types of vignettes, with substance misuse rating higher than schizophrenia, which in turn rated higher than major depression.14 The social distance scale used in this study covered interactions of various degrees of closeness that could occur with a young person. The respondent was told:
`The following questions ask how you would feel about spending time with John/Jenny. Would you be happy to go out with John/Jenny on the weekend? To work on a project with John/Jenny? To invite John/Jenny around to your house? Would you be happy to develop a close friendship with John/Jenny?'
The response options were: `yes, definitely', `yes, probably', `probably not' or `definitely not'. Parents were asked the same questions, except that the social distance questions were asked in relation to their child, e.g. `Would you be happy for your child [name of child] to go out with John/Jenny on the weekend?'
Assessment of variables associated with stigma
To measure exposure to mental disorders and professional help-seeking, the
young people were asked the following questions in relation to the particular
vignette presented:
`Has anyone in your family or close circle of friends ever had a problem similar to John's/Jenny's? (If yes) Have they received any professional help or treatment for these problems? Have you ever had a problem similar to John's/Jenny's? Have you received any professional help or treatment for these problems?'
Respondents were scored as `exposed' if they knew someone who had received help and if they had themselves received help.
The impact of campaigns was assessed by asking those at school, `In the past 12 months, have you received any information about mental health problems from your teachers?' and asking those not at school, `In the past 12 months, have you had any information about mental health problems at your workplace/TAFE [technical college]/university?'. Specific awareness of Australia's national depression initiative was assessed by asking: `Which organisations related to mental health problems, if any, can you think of?' and `Have you heard of beyondblue – the national depression initiative?' Awareness of this initiative was scored as being present if beyondblue was either recalled or recognised.15
Statistical method
The items on social distance and stigma were reduced using principal
components analysis with varimax rotation. A scree plot was used to determine
the number of components to retain. Separate analyses were carried out for
youths and parents. The resulting components were compared between the two
samples using coefficients of congruence. Items were scored into scales by
summing items, based on the component on which they loaded most highly. The
resulting stigma scales were used as the dependent variables in regression
analyses examining the predictors of the various components of stigma. Because
some of the scales (`social distance' and `weak not sick') had skewed
distributions, the dependent variables were dichotomised at the median and
binary logistic regression was used. The data were also checked with linear
regression analysis of the continuous measures, but the findings were
substantially the same so only the logistic regressions are reported here. Two
sets of regression analyses were carried out. The first involved the full
youth sample and examined the following predictors: type of vignette
(depression, psychosis, social phobia, depression with alcohol misuse),
socio-demographic characteristics (age, gender), exposure to help-seeking for
mental disorders (in self, in family or in friends) and exposure to campaigns
(aware of national depression initiative, received information at educational
institution or workplace). In these regression analyses, type of vignette was
dummy coded with participants receiving the depression vignette selected to be
the reference group. The second set of regressions involved the subset of
youths who also had a co-resident parent interviewed. The predictors included
all those above, plus the parent's scores on the stigma scales (also
dichotomised at the median). All analyses were carried out using the
Statistical Package for the Social Sciences version 14.0.
|
|
|---|
Factors associated with stigma
Table 1 shows the predictors
of the attitude scales in the full youth sample. It can be seen that type of
vignette is an important determinant of stigma, but the effects vary across
scales. Relative to depression, psychosis was associated with higher scores on
`dangerous/unpredictable' and `social distance'. Social phobia was associated
with lower scores than depression on `dangerous/unpredictable' and higher
scores on `weak not sick' and `stigma perceived in others'. Compared with
depression alone, depression with alcohol misuse was associated with higher
scores on `social distance', `dangerous/unpredictable' and `stigma perceived
in others'.
|
View this table: [in a new window] |
Table 1 Predictors of different components of stigma in youth: odds ratios and
probability values from simultaneous logistic regressions
|
Socio-demographic characteristics were found to be associated with the various scales in different ways. `Social distance' and `weak not sick' decreased with age, whereas belief in `dangerous/unpredictable', `stigma perceived in others' and `reluctance to disclose' increased. All aspects of stigma were lower in female respondents, except for `stigma perceived in others'. Having personally had help for a mental disorder was associated with lower scores on `social distance' and `weak not sick', but higher on `stigma perceived in others'. Having a family member or friend who had received help for a mental disorder was associated with lower scores on `social distance', `weak not sick' and `reluctance to disclose'. Those who were aware of the national depression initiative or who had received information at their educational institution or workplace scored lower on `weak not sick'. However, campaign exposure was unrelated to other components of stigma.
Table 2 shows the predictors where data from parents were also available. The major interest in these analyses is the associations with parental attitudes. All attitude scales showed quite specific associations between the young person and the parent, apart from `stigma perceived in others'. There were only two cross-associations between scales: `weak not sick' in the young person was predicted by lower `stigma perceived in others' in the parent, as well as by the parent's `weak not sick' beliefs; similarly, `stigma perceived in others' was predicted by the parent's `dangerous/unpredictable' beliefs.
|
View this table: [in a new window] |
Table 2 Predictors of different components of stigma in young people who live with
a parent: odds ratios and probability values from simultaneous logistic
regressions
|
|
|
|---|
Differences between disorders
Most previous research on stigma has examined either severe mental
disorders or `mental illness' that has not been defined. Where specific
disorders have been investigated, it has been found that some disorders are
more stigmatised than others, in particular people with psychotic disorders or
substance
misuse.1,6,12
However, our results show a more complex pattern, with disorders that are more
stigmatised on one component not necessarily being more stigmatised on
another. Consistent with previous research, psychosis and depression with
alcohol misuse were seen as more dangerous and unpredictable, and elicited
greater social distance. However, social phobia was more likely to be seen as
a weakness rather than a sickness and was perceived as being more stigmatised
by others in society. These findings are consistent with the reports of people
with phobias about the reactions of others to their
behaviour.18
Socio-demographic differences
Age differences in stigma showed complex trends. Social distance and belief
that the person is weak rather than sick decreased with age, whereas there
were increases in the belief in dangerousness and unpredictability, stigma
perceived in others and reluctance to disclose. Similarly, gender differences
were complex. Most aspects of stigma were higher in male respondents,
consistent with previous
research.3,19
However, male respondents tended to be less likely to perceive stigma in
others, which might relate to their lower awareness and knowledge about mental
health problems in
general.20 These
age and gender differences were present in a multivariate analysis which
controlled for a number of variables relating to exposure to mental disorders
and campaigns. These findings show that age and gender differences are not
simply due to differential exposure and that other factors must be partly
responsible.
Experiences affecting stigma
Research with adults has consistently shown that stigma is reduced through
contact with people affected by mental
disorders,4,5
but the opposite was found in one study of
adolescents.6 This
latter study used a scale of `familiarity with mental illness' which included
a broad range of experiences such as being personally affected and having
family and friends who are affected. However, the findings reported here show
that a personal history of mental disorder and seeking professional help can
have a different impact from contact with family or friends who have sought
help. The findings also show that such contact can have different effects on
various components of stigma. Both types of contact reduced social distance
and the belief that the person is weak rather than sick. However, only
personal history increased the perception of stigma in others, whereas only
contact through family and friends decreased reluctance to disclose. These
results show that although contact is generally a good thing, it does not
reduce all aspects of stigma. As Corrigan et al pointed out, contact
can worsen a stereotype if the type of person interacted with reinforces
it.6
The findings also show that campaigns can have an effect that is detectable at the population level. Awareness of Australia's national depression initiative, beyondblue, was associated with less belief that the person is weak rather than sick. A similar association was found for reported exposure to mental health information at an educational institution or workplace. However, neither of these exposures was associated with other aspects of stigma. A previous analysis of the impact of beyondblue on youth showed no association with social distance, but positive associations with recognition of depression and beliefs about treatment.15 From the cross-sectional data in this study it is impossible to determine the direction of causality. However, it seems plausible that campaign exposure did lead to the reduction in stigma, rather than the other way around, because exposure to information in schools or workplaces is not under the control of the individual. It is also hard to imagine how belief that a mental disorder is an illness rather than a weakness would lead to differential exposure to campaign information, whereas other stigma variables (such as social distance) would not.
This study is the first to measure stigmatising attitudes in both youths and parents. The data show quite specific associations between the pattern of attitudes in the young person and in the parent. Again, it is impossible to be sure of the causal direction with cross-sectional data. However, it seems more plausible that the influence would be from parent to child, or because of common experiences of both parent and child, rather than from child to parent. Efforts to reduce stigma in young people do not typically involve parents, although it has recently been suggested that they should be actively involved.3 Our findings support this suggestion.
Limitations
As discussed above, the causal interpretation of the findings is limited by
the cross-sectional nature of the data. Longitudinal and experimental studies
are needed to better understand causality. There may be additional components
of stigma (e.g. self-stigma, discriminatory behaviour and experiences of being
stigmatised) that were not measured. There needs to be more systematic
coverage of potential stigma items based on initial qualitative research into
the many aspects of stigma. Because questionnaires that ask explicitly about
stigma may be affected by the social desirability of responses, future work
needs to examine implicit and behavioural
measures.21 A
limitation of the sampling is that parents were not interviewed for those
living away from their family and that only one co-resident parent was
surveyed for each child. Furthermore, there was a bias in the parent sampling
towards mothers, despite the use of a random selection method. Finally, the
regression models predicting components of stigma accounted for only small
percentages of the variance.
Implications of the study
This study is one of the few to look at stigma early in life and the
influences on its development. Stigma is clearly multidimensional and each
dimension is affected by different influences. The pattern of stigma varies
across different mental disorders. Similarly, experiences that affect one
component of stigma do not necessarily affect others. We have shown that
personal experience of a mental disorder, contact with others who are affected
and have sought professional help, exposure to campaigns and parental
attitudes all have an influence on some aspects of stigma. Our findings
support current efforts to reduce stigma through school and workplace
campaigns and for young people to have organised contact with people who have
experienced mental disorders and sought help. However, no single approach is
likely to reduce all aspects of stigma. The findings also show the need for
stigma reduction efforts that are aimed at young people to incorporate parents
as a potential target.
|
|
|---|
|
|
|---|
Related articles in BJP:
| ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||